- Congenital Heart Defects are the #1 birth defect and are the #1 cause of birth defect related deaths. Source: March of Dimes
- About 1 out of every 100 babies are born each year with some type of Congenital Heart Defect. (approx. 40,000/year) Source: Children’s Heart Foundation
- Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for CHD. Source: Children’s Heart Foundation
- This year approximately 4,000 babies will not live to see their first birthday because of Congenital Heart Defects. Source: Children’s Heart Foundation
- Of every dollar the government spends on medical funding only a fraction of a penny is directed toward Congenital Heart Defect research. Source: Children’s Heart Foundation
- Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood. Source: March of Dimes
- It is a proven fact that the earlier CHD is detected and treated, it is more likely the affected child will survive and have less long term health complications. Source: March of Dimes
Tuesday, July 14, 2009
I Could Not Ask For More....
To many people, "I Could Not Ask for More" is a song by Edwin McCain. It was "our" song for John and I in college. Whenever we were going through something bad and I heard that song, I knew everything was going to be okay.
This song title has become much more than words for me - it is a way of life. I honestly could not ask for more than how great my life is. I feel blessed every single day to have John, Owen and my beautiful baby girl Amelia. I just wish I could hold her and kiss her all day long, every single day.
My friend Mary posted a link to a blog about a family whose baby girl Kinsey died at birth. They then got pregnant again and their son was diagnosed with a fatal genetic condition called Trisomy 18. He died 5 days after birth.
I could not help but cry when I read this blog - who wouldn't cry? It just makes me so grateful for Amelia. I am so grateful that I get to be home with her and enjoy her smile, enjoy seeing her in her "cibby" each morning when she wakes up and kicks her legs in her "sleepsuit" and laughs. I can't imagine ever losing her, not being able to see her smile ever again. I don't ever want to take motherhood for granted, because some may never get to experience it.
Hold your child tight, hug them, kiss them, tell them you love them. There are so many that don't get to do that!!
I love you, baby girl.
This song title has become much more than words for me - it is a way of life. I honestly could not ask for more than how great my life is. I feel blessed every single day to have John, Owen and my beautiful baby girl Amelia. I just wish I could hold her and kiss her all day long, every single day.
My friend Mary posted a link to a blog about a family whose baby girl Kinsey died at birth. They then got pregnant again and their son was diagnosed with a fatal genetic condition called Trisomy 18. He died 5 days after birth.
I could not help but cry when I read this blog - who wouldn't cry? It just makes me so grateful for Amelia. I am so grateful that I get to be home with her and enjoy her smile, enjoy seeing her in her "cibby" each morning when she wakes up and kicks her legs in her "sleepsuit" and laughs. I can't imagine ever losing her, not being able to see her smile ever again. I don't ever want to take motherhood for granted, because some may never get to experience it.
Hold your child tight, hug them, kiss them, tell them you love them. There are so many that don't get to do that!!
I love you, baby girl.
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